Saturday, June 4, 2011

Batten Disease Awareness - Giveaway

Read on to learn about Batten.

Click this button to enter the giveaway and see below for bonus entries

This weekend is International Batten Disease Awareness weekend, and you all know I have a soft spot for Tatyanna and her relentless fight against this terrible disease.

Tatyanna is a very brave little girl battling Batten disease with the help of many lovely people who have joined efforts to allow her to benefit from the latest research. She is an amazing child who finds the strength to smile and hug other people's worries away, when she herself is suffering.

I am hoping this giveaway will help spread the word about Tatyanna's Hope and Batten disease. The giveaway will end June 8th at 11:59 EDT and you can enter by simply spreading the word about Tatyanna and letting me know. More details at the bottom of this post.

A little about Batten...
Batten disease is a rare inherited autosomal recessive neurodegenerative disorder and can affect children and young adults.

It is the most common form of the NCL (Neuronal ceroid lipofuscinoses) group of disorders. The four types of Batten disease are classified by age group: infantile NCL (INCL), late infantile NCL (LINCL), juvenile NCL (JNCL), and adult NCL (ANCL).

Batten disease is inherited through what is called an autosomal recessive pattern. It gets inherited like blond hair, i.e. if both parents carry a specific mutation in their DNA, their children have a 25% chance of being affected.

Research has shown Batten disease is caused by problems with the brain's ability to remove and recycle proteins. This is because mutations in the genetic DNA impair the body's ability of creating certain substances, which in turn causes the buildup of lipofuscin pigments in the body's tissues.

These lipofuscins pigments are considered "wear and tear" pigments, so research to cure Batten disease can have much larger benefits through the understanding of how the body deals with damage and aging.

Those affected with Batten disease literally waste away. It all starts with vision and motor skills loss, and over time seizures worsen, mental alertness becomes more and more impaired, muscle mass starts decreasing, and the child or young adult's life ends blind and bedridden.

Right now, there is no cure for Batten disease, and the very expensive treatments that do exist are only successful in slightly delaying the inevitable.

This doesn't have to stay this way however. There is HOPE!

Research is ongoing and eight genes have already been identified as having an association with Batten disease. Gene therapy for this disease is in its infancy, so more research is needed to help understand not only Batten disease, but many other NCL disorders.

Help spread the word!

The more people are aware, the faster research will progress. The faster research progresses, the faster a better treatment will be found, or even a CURE! The faster a cure is found, the more we can help Tatyanna celebrate many birthdays!

So here's to hoping this giveaway will help spread the word. You can enter by simply telling your friends about Tatyanna's Hope and letting me know. Be it twitter, facebook, blogging, emailing, or simply telling your friends, it all goes. Spread the word!

Up to 10 BONUS giveaway entries for finding the answers to the questions below :)
~ 1 ~ Who did she meet in this blog post?
~ 2 ~ What project did her sister pick?
~ 3 ~ Suitcases... they are like what?
~ 4 ~ How is milk packaged in this blog post?
~ 5 ~ What was Tatyanna's wish?
~ 6 ~ What color did they choose?
~ 7 ~ What did most drawings have in common?
~ 8 ~ What did Tatyanna use to say when offering coffee?
~ 9 ~ What did Tatyanna do to the TV?
~ 10 ~ Tatyanna made great progress during the treatment. What did she manage to do?

On June 8th at 11:59PM, one lucky winner will be chosen using and will win one of my HUGE Senbazuru, A Thousand Paper Cranes Get Well card, as well as a GORGEOUS one-of-a-kind beaded metal bookmark with the words of your choice (up to 15 letters) for a total value of over $20!

Entries (Giveaway closed June 8th 11:59 PM EDT):

@ApronsbyMeMe (1)
@ApronsbyMeMe (bonus 1) ~ WINNER drawn by
@ApronsbyMeMe (bonus 2)
@ApronsbyMeMe (bonus 3)
@ApronsbyMeMe (bonus 4)
@ApronsbyMeMe (bonus 5)
@ApronsbyMeMe (bonus 6)
@ApronsbyMeMe (bonus 7)
@ApronsbyMeMe (bonus 8)
@ApronsbyMeMe (bonus 9)
@ApronsbyMeMe (bonus 10)
@barleecreations (1)
@barleecreations (bonus 1)
@barleecreations (bonus 2)
@barleecreations (bonus 3)
@barleecreations (bonus 4)
@barleecreations (bonus 5)
@barleecreations (bonus 6)
@barleecreations (bonus 7)
@barleecreations (bonus 8)
@barleecreations (bonus 9)
@barleecreations (bonus 10)
@BattenDiseaseUK (1)
@BernoullisAttic (1)
@cntkreations (1)
@CrankyCatStudio (1)
@Demure4you (1)
@DesignsbyAudrey (1)
@FadedLeaves (1)
@ForgetMeNotSoap (1)
@hotglassbabe (1)
@JuliaPeculiart (1)
@kraftymax (1)
@lukehebe (1)
@PaintingByElfie (1)
@pur3h3art (1)
@rajankoshy (1)
@sandyunderwood (1)
@SilverSkyDesign (1)
@ThruSarasEyes (1)
@UrbanDivaStyle (1)
@WoolyBumblebee (1)
@youtubebeauties (1)
FarrOutDesigns (1)
KLDesigns (1)

Good luck and thank you for spreading the word ♥

Wednesday, June 1, 2011

mv June Games and Contest - OUTDOORS

This month's games have ended. Since most of you are enjoying the nice weather during the summer, the games will come back when most people get back online. See you all September 1st for the next games and awesome prizes. Thank You ALL for being such AMAZING players, it's been a BLAST! You are ALL ☆☆☆☆☆ LOVE YA!

Let's have FUN FUN FUN! :) There's the usual TOP PLAYER contest, so enjoy playing to the max for cool prizes! Since many players will be enjoying the great outdoors instead of being on the computer this month, there is no Games giveaway, but we do have a Batten Disease Awareness Giveaway going on :) FUN prizes!

The games are week-long and end June 8th 2011 at 11:59 PM EST.

See below for prizes, scores, and rules, or just click this button to win 5 mvpoints (5 mvpoints)
Click the extra points links for easy peasy 50 points :)

Jump to:
Prizes ~ As many prizes as players :)
Games ~ 3 AWESOME games
Contests ~ TOP players & FAV match
Rules ~ How to participate & italic print
Scores ~ The list of AWESOME tweeps and peeps :)

● The PRIZES ●
    1st place ........ Surprise Gift ($30 or more)
    2nd place ....... Surprise Gift ($20 or more)
    3rd place ........ Surprise Gift ($10 or more)

    200 .......... GIFT CERTIFICATE: $5
    160 .......... GIFT CERTIFICATE: $3
    120 .......... GIFT CERTIFICATE: $2
    80 ............ GIFT CERTIFICATE: $1
    60 ............ Your link on the BONUS List
    20 ............ COUPON: FREE mv magnet & 10% OFF one item
    1 .............. One cool SEO dot on the dotties page (19 max) :)
    ~MAX mvPOINTS: 600 (three $5 gift certificates if playing to the max :)

    ❁ May GAMES ❁

    ❁ Find the Duck GAME:
    A real duck has hidden somewhere in my shop. Find the duck, hit the TWEET button on that page, and add @mvbeads DUCK! to win 5 mvpoints. Toy ducks don't count :)
    ~ Beware, this ain't no sitting duck! THIS duck likes to waddle around. It last changed location Tuesday 5PM, looking for passion. Find it again after it moves, and win again.

    ❁ Positive GAME:
    Tweet @mvbeads a positive thought every day for 5 mvpoints each. I am looking forward to reading your tweets ♥

    ❁ Matching GAME:
    Pick a favorite creation of yours, find an item from mv's ArtFire shop or gift shop that would wear/pair nicely with your creation, and put both links in a tweet to @mvbeads for 5 mvpoints. One match per day.
    ~Particularly creative matches that make one click or tell a story will win 10 mvpoints and my favorite match will be featured on my blog. So go ahead and have FUN, your apron with an mv necklace, your earrings with an mv card, your handmade gift for mom with mv's Kakuro/Sudoku Poster... Looking forward to seeing your creative matches! :)

    10 mvpoint matches so far:

    ♥ How to participate ♥
  • Play any of the games above: 5-10 mvpoints each
  • Promote the games: 5 mvpoints each
  • Retweet any of today's @mvbeads tweets: 1 mvpoint each
  • Add #mvlove to a funny tweet: Priceless :)
  • Anything with #mvlove will get my attention, so be creative :)
  • ♥♥♥ Spread the word and help Tatyanna. ♥♥♥ Thank you so much!

  • Promote the games and add @mv or let me know: 5 mvpoints each

  • Purchase any product from 40 mvpoints per item
    ~ (Mention Tatyanna in Note to Seller and 50% of proceeds will be donated to her Hope Fund.)
  • Activate the mvgames widget: 10 mvpoints

    Blogs and other venues:
  • Follow this blog and comment below: 10 mvpoints (ok if already a follower as well)
  • Add the mvgames widget: 10 mvpoints
  • Tell me your favorite item from my zazzle store, maximum one link per day :) 5 mvpoints
    ~ (100% of my Royalties from "Get Well Wishes" Senbazuru products will be donated to Tatyanna's Hope Fund.)

    BONUS contest points:
    The links below will tweet about players with 60+ points during May or June's games. Click to tweet and win extra points in this month's contest. Easy Peasy! Each tweet will count as 5 extra points. Maximum 1 click per link per day for 50 easy extra points every day.

  • I can't believe it's soap! Check out the AMAZING details!
  • You ain't seen cute 'till you've seen CUTE as a buttonwilloe!
  • Dishtron - the OTHER Tron. Can you guess what it is? :)
  • Don't worry be Happie :) Peace out man, check out this gal ☮
  • Crochet - creative knot tying turned to art!
  • It's owl in the personality. Art with spirit & heart ♡
  • This is what passion looks like. Weaving 11k+ beads one by one!
  • Oh my! How CUTE! Tags made to look just like your furbaby!
  • Wanna see what was in Mariah Carey's baby gift basket?
  • Help Tatyanna win more time against Batten Disease

    Games widget/gadget (10 mvpoints)

    <!-- Begin FREE FUN Widget --><center><a href="" title="mv FUN Games Giveaways Contests and Coupons" target="_blank" >mv Games<br /><img src="" alt="mv FUN Games Giveaways Contests and Coupons" title="mv FUN Games Giveaways Contests and Coupons" border="0" /></a></center><!-- End FREE FUN Widget -->

    PRIZES while supplies last. First come, first served. Ties broken in order of comments on this post. 600 mvpoints max. Coupons and gift certificates cannot be combined (one coupon/gift certificate per order). Coupons and gift certificates are transferrable. All prizes come with FREE shipping to the US. mvPOINTS can be redeemed at any time by sending a tweet to @mvbeads with the hashtag word #mvredeem and your choice of prize. I will reply either through Direct Message or email within 24 hours and send the code corresponding to your prize. The points will be deducted from your available mvpoints as soon as your code goes live. June coupons/gift certificates expire June 30th.

    ============ SCOREBOARD ============
    totalSCORES - POINTSavailable - @player
    243 - 243 - @apronsbymeme TS
    625 - 600 - @barleecreations TS
    2 - 2 - @BattenDiseaseUK TS♡
    303 - 303 - @BernoullisAttic TS
    1 - 1 - @Catherin03
    186 - 186 - @CrankyCatStudio TS
    3 - 3 - @Demure4you TS
    2 - 2 - @DesignsbyAudrey TS
    2 - 2 - @djrunnelsdotcom
    1 - 1 - @DOROTHYBENCE
    1 - 1 - @eleccionlibre
    1 - 1 - @FadedLeaves TS
    1 - 1 - @ForgetMeNotSoap TS
    1 - 1 - @freetweetdaily
    1 - 1 - @happiehippiechk TS
    1 - 1 - @hotglassbabe TS
    5 - 5 - @IwanaBeloved
    79 - 79 - @kraftymax TS
    1 - 1 - @JuliaPeculiart TS
    1 - 1 - @lennwinn
    2 - 2 - @LifeExpedition
    1 - 1 - @lukehebe TS
    5 - 5 - @MaggiesDesigns TS
    1 - 1 - @monikadesign
    1 - 1 - @PaintingByElfie
    2 - 2 - @pur3h3art TS
    1 - 1 - @rajankoshy TS
    5 - 5 - @RonaHorn
    1 - 1 - @sandyunderwood
    11 - 11 - @SilverSkyDesign
    1 - 1 - @sisterjewelry TS
    1 - 1 - @sleem1948 TS♡
    #ff - #ff - @tatyannashope TS♡
    9 - 9 - @ThruSarasEyes TS
    1 - 1 - @treedancer56
    1 - 1 - @UrbanDivaStyle TS
    1 - 1 - @WebSelling4U
    1 - 1 - @WoodArtsUniv
    1 - 1 - @youtubebeauties
    1 - 1 - BohemianIce & AliveWithColor Art, Photography and Jewelry Studio
    1 - 1 - Kimberly Lynn Designs

    Last updated 11:59 PM. Next scheduled update: See you in September!
    Do let me know if you are a player and I've missed you.
    Click the Follow buttons on the follow-fun-fellow-players list to easily follow 5+ pts awesome players. They RT & they are interactive! :)
    | (TS) Tatyanna Supporter | (♡) No contest entry |

    Let's have FUN FUN FUN indoors or outdoors :) Go ahead, have a blast, and enjoy the games! :)



    ➊ @barleecreations (600) ....... Surprise Gift ($30 or more)
    ➋ @BernoullisAttic (303) ........ Surprise Gift ($20 or more)
    ➌ @apronsbymeme (243) ....... Surprise Gift ($10 or more)

    Please send me an email if I don't already have your address. Do let me know if you have any preferences for your surprise gift :)

    ☆☆ Gift Certificate PRIZES:
    Everyone with 80+ available points, please contact me for your Gift Certificate and Coupon codes :)

    200 .......... GIFT CERTIFICATE: $5
    160 .......... GIFT CERTIFICATE: $3
    120 .......... GIFT CERTIFICATE: $2
    80 ............ GIFT CERTIFICATE: $1

    243 - @apronsbymeme TS
    600 - @barleecreations TS
    303 - @BernoullisAttic TS
    186 - @CrankyCatStudio TS

    ☆☆ Magnet and 10% COUPON PRIZES:
    Everyone with over 20 available points, please contact me for your Coupon codes :)

    79 - @kraftymax TS

    ☆☆ Cool SEO dots:
    Anyone on the players list can save up to 19 mvpoints a month and accumulate them over the year to use for future prizes. Just let me know and I will add your SEO link to the dotties page. Tweet SEODOTS @mvbeads and add which shop/website/blog you would like a backlink to and how many dots you are redeeming (max 19).

    Thank you all for the AWESOME FUN! See you September 1st for the next big games, or on twitter and FaceBook for smaller games before then :)

    The ♡it?♡it! Contest is June 17th to 21st at BTW :)

    ♡ With LOVE and THANKS! ♡